Mapping Fate: A Memoir of Family, Risk, and Genetic Research

Full Title Mapping Fate: A Memoir of Family, Risk, and Genetic Research
ISBN 0520207416
ISBN13 9780520207417
Publisher University of California Press
Authors Alice Wexler
Edition 1st Edition

In Mapping Fate, Alice Wexler tells the story of a family at risk for a hereditary, incurable, fatal disorder: Huntington's disease, once called Huntington's chorea. That her mother died of the disease, that her own chance of inheriting it was fifty-fifty, that her sister and father directed much of the extraordinary biomedical research to find the gene and a cure, make Wexler's story both astonishingly intimate and scientifically compelling.
Alice Wexler's graceful and eloquent account goes beyond the specifics of Huntington's disease to explore the dynamics of family secrets, of living at risk, and the drama and limits of biomedical research. Mapping Fate will be a touchstone for anyone with questions about genetic illness and the possibilites and perils of genetic testing.

Wexler tells two stories, the one of her family's emotional odyssey after her mother was diagnosed with Huntington's disease, and the relentless efforts to find the gene and a cure, and the news that she had a 50/50 chance of getting it also. This book comes from her unique position of being both reporter of how scientists sought a cure and someone who could be saved by it.

Dimensions 5.50 (w) x 8.25 (h) x 1.00 (d)
Subjects Neurology


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