Genetic Databases: Socio-Ethical Issues in the Collection and Use of DNA
edited by Richard Tutton and Oonagh Corrigan
Publisher: London : Routledge, 2004.
ISBN: 0203577922
Edition: (electronic bk. : Adobe Reader)
Notes:
Book Cover -- Title -- Contents -- Foreword -- Contributors --
Acknowledgements -- Introduction: public participation in genetic
databases -- Person, property and gift: exploring languages of tissue
donation to biomedical research -- .
Blood donation for genetic research: what can we learn from donors'
narratives? -- Levels and styles of participation in genetic
databases: a case study of the North Cumbria Community Genetics
Project -- .
Informed consent: the contradictory ethical safeguards in
pharmacogenetics -- Ambiguous gifts: public anxiety, informed consent
and biobanks -- Abandoning informed consent: the case of genetic
research in population collections -- .
Children's participation in genetic epidemiology: consent and control
-- 'Public consent' or 'scientific citizenship'? What counts as
public participation in population-based DNA collections? -- .
Tissue collection and the pharmaceutical industry: investigating
corporate biobanks -- Index.
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