Library: Northwestern State University (Natchitoches, LA)
Last Loaded: 12/28/2006
MARC Timestamp: 04/27/2005
Control Number Org.:
Control Number: AAI9802255
000 03891nam 2200469 4500
001 AAI9802255
005 20050427133130.5
008 050427s1997 ||||||||||||||||| ||eng d
020 $a0591519380
035 $a(UnM)AAI9802255
040 $aUnM$cUnM
099 $aSEE ELECTRONIC ADDRESS
100 1 $aStieglitz, Kimberly Anne.
245 10 $aAfrican-American families' experiences in living
with HIV/AIDS (Immune deficiency).
300 $a173 p.
500 $aSource: Dissertation Abstracts International,
Volume: 58-07, Section: B, page: 3563.
500 $aDirector: Marion E. Broome.
502 $aThesis (D.N.Sc.)--Rush University, College of
Nursing, 1997.
520 $aThe incidence of HIV/AIDS is rapidly increasing
among families due to the high rates of new infections in
women and children of color, and adolescents. Families of
color with HIV are usually low-income, marginalized, and
have traditionally experienced access inequities in health
care. HIV research has not focused on women until recently,
and very few studies have been done with families and
children. Nonetheless, HIV has a tremendous impact on
families, but very little is known about the meanings and
implications of the family as a unit. The purpose of this
study is to reveal how families experience living with
HIV/AIDS through the perspective of participants as
individuals and as family members.
520 $aHeideggerian hermeneutic phenomenology provided
the framework for this study. Five African American families
participated (n = 14 members). Inclusion criteria were the
presence of a biologic mother and child with HIV, English as
the first language, full neurocognitive functioning, and the
ability to articulate experiences. Families had 2 to 4
participants. Ages ranged from 11 to 74. Forty-two in-depth
interviews and 22 Kinetic Family Drawings were obtained.
520 $aHermeneutic analysis (Diekelmann & Allen, 1989)
yielded seven themes, one subtheme and one constitutive
pattern. The themes are: Coming Home to AIDS, Not Telling
with a subtheme of Staying Away, Caring Matters-Supportive
Relationships, Hope as a Tenet of Living, Spiritual and
Philosophical Beliefs as Sustenance, Family Caregiving as
Doing What Needs to be Done, and Planning Ahead as Being a
Parent. The constitutive pattern which describes themes'
interconnectedness is Living Toward Dying.
520 $aFindings from this study can be used to inform
health care providers of important meanings of HIV illness
to African American families. Important issues for clinical
practice include initiating discussions about dying even
while clients are essentially well, providing care which
meshes with families' needs and goals, decreasing
socioemotional barriers to care, and improved policies for a
marginalized population at great risk of being neglected.
The study identifies many areas in need of further research,
in that each theme and pattern needs to be much more clearly
delineated, defined, and extended for bridging gaps in the
provision of care.
590 $aSchool code: 0591.
650 4 $aHealth Sciences, Nursing.
650 4 $aSociology, Ethnic and Racial Studies.
650 4 $aPsychology, Social.
650 4 $aBlack Studies.
650 4 $aSociology, Individual and Family Studies.
690 $a0569
690 $a0631
690 $a0451
690 $a0325
690 $a0628
710 20 $aRush University, College of Nursing.
773 0 $tDissertation Abstracts International$g58-07B.
790 10 $aBroome, Marion E.,$eadvisor
790 $a0591
791 $aD.N.Sc.
792 $a1997
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